Ellis
Personal Project, 2021

"Aku tidak ingat aku pernah punya rambut." "I don't remember ever having hair." She said it with a laughing emoji.

Born with Alopecia Universalis, a condition that prevents any hair from growing anywhere on the body, she grew up in a village where being photographed felt like an exposure she couldn't afford. When I asked if she had childhood photos, she said there were none. Not because no one tried. Because she wouldn't let them.

This project started as a final assignment for Panna Future Talent 2021, an online photography class. What it turned into, I hadn't planned for.









Ellis and I started talking through WhatsApp, working around her shifts at the canteen inside a government building in Central Jakarta. She'd message when it was raining and the customers were few. She gave me her work address like it was the most natural thing in the world: just come find me here. What built between us before the first shoot wasn't a photographer-subject dynamic. It was something more careful than that. Small messages, laid down slowly.

In the world Ellis grew up in, hair is a woman's crown, it’s not metaphorically, but actually, socially, in the way people treat you. It is shorthand for femininity, for beauty, for the right to exist without being questioned. Alopecia Universalis removes it entirely. What follows, for many women, is a long and mostly invisible negotiation with self-worth, with the gaze of other people, with the ongoing pressure to explain a body that isn't asking permission.

Ellis absorbed that for years. Then, slowly, something shifted. She saw a woman from outside Indonesia living publicly with the same condition and not hiding. She talks about that moment the way you talk about realizing a door exists. From there she found the Indonesian Alopecia community, and in it, a purpose: making sure other women find that door sooner.

The photographs don't try to make this dramatic. They're close and unhurried, made in the ordinary rooms of a working woman's day: a canteen kitchen, an office window with Jakarta behind it, a corridor bench, a small compact mirror catching a fragment of herself. The WhatsApp messages appear inside the images as texture, as proof that what you're seeing was real and was built before the camera came out.

Before we met, Ellis told me she cries easily. She offered it almost as a warning, and also as a kind of gift. That willingness to be known before being photographed is what this work is actually about. Not the diagnosis. Not what's absent.

The question I left with is the same one I came in with. It just weighs differently now. Can we let a woman exist outside the thing we decided made her beautiful? Spending time with Ellis, that stopped feeling like a question. She's already existing. She has been the whole time.